Heartbroken Parents Blast Controversial Nice Decision

3 months ago
Ollie Carroll and his 4-year-old sister suffer from the incurable Batten disease
The rare genetic condition means they are  unlikely to live past the age of 12
It has already robbed Ollie, a huge Ed Sheeran fan, of his ability to talk and walk
Nice has announced its 'preliminary decision' against funding cerliponase alfa
Ollie's plight touched the nation when Prince Harry was pictured hugging him
The iconic photograph went viral and was seen by millions of people worldwide 
Personality changes
Loss of motor skills and the ability to walk, talk and communicate

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